My Daughter Had a Seizure and I Became More Fearless
Founder of My Good Life
September 24,2019 at 7:11PM UTC
Three years ago, our oldest daughter had a grand mal seizure. It was a terrifying experience. Though she was diagnosed with deafness at birth and autism at the age of 5, nothing prepared us for this medical emergency. We felt powerless, yet we needed to remain calm for the sake of all our children. It was difficult to watch a tear roll down my husband’s eye as he held our daughter during her seizure. As he cradled her and prayed, asking God to make it stop, an array of emotions poured over me. Despite the shock of the moment, we were still focused, making sure we were calm when calling 911.
Despite the various thoughts that flooded our minds, we felt an immediate desire to make a crucial decision. A decision that would encompass all our emotions, and give way to our inevitable new reality; a long uncharted territory that was ahead of us with this new component of our daughter’s additional diagnosis. We decided to take a 15-hour road trip home to Chicago.
Our family was upset with our decision; and they cautioned against taking a road trip with her so soon after her seizure. When she was younger, before the seizure, we took numerous trips. I even earned three degrees while raising her on my own. We’ve traveled across the country, daring to try to live a normal life, a good life. However, we had never faced a major-medical issue until now. Yes, they were right, we were crazy, and we still are. Because seeing your children in pain does something to you. It changes you forever, in a stubborn yet thoughtful way. Below are three main reasons why we took the trip, which turned out very well without any medical emergency.
We Wanted to Feel Normal (Typical)
Ever since leaving the hospital with my daughter days after her birth, I knew we were different from other families. Daily we endure the countless stares and actions of others, which serves as reminders of how unique our family truly is. Until now, I was among the minority of parents whose children have autism yet had never had a seizure. I thought that we had dodged that bullet. This experience allowed us to reshape yet again how we viewed our family and other families that have special needs children. Almost all families that looks ordinary have things that make them special and unique as well.
We Were Fearless
Midway through the last 17 years of parenting my special needs daughter, I reached a point of no return. Perhaps it was the endless meltdowns or the sleepless nights. But somewhere along the way, I became fearless, unashamed, and unapologetic about my decisions. I set out to live a good life. That idea made me bold in my pursuits, passions, and purpose. There is something about the pain that comes from seeing your child hurting or suffering that makes you suddenly brave enough to make bold decisions. After going through several things since my daughter’s diagnosis years ago, after taking a moment to grieve, but then I move on, with a new sense of purpose.
We Wanted to Go Home
Since our family moved away from the Chicagoland area, a few years ago, we had yet to take her home. Once our reality was rocked, we wanted to be near our family. We desperately needed the hugs and love that would sustain us in the coming months, and keep us sane during that time. There is a certain feeling that came over us as we crossed into the city limits. It also reminded us how far we had come and that despite this latest challenge, we needed to move forward. There is no place like home. We immediately felt the love of our family and friends. We absorbed hugs from friends and relatives, some of whom were unaware of the incident. Though we are deliberate in maintaining a level of privacy that for our daughter, we wanted to share this to let other families know that they are not alone.
Browse recent posts
I have been in my position for over a year, gone above and beyond whenever asked, volunteered to take on additional responsibilities and am delivering unprecedented results at a rate of 2x the previous person in this position who did not take on any additional responsibilities.
I was promised a review and raise at six months; however, the company started a restructuring and it was tabled. Approaching my one year anniversary, I requested my review from my new Director and was told that she will review me after SHE has been there for a year. I then created a self-evaluation form, completed it and included forms to solicit input from managers and supervisors who could attest to my performance over the past year. I received the response that while appreciated, I was not hired to give HR input and they are not going to give me an annual review. Since that time, I have witnessed two male counterparts be given promotions with raises. Surely the Director met with them to do this. Now my position, for a nearby location with this company, is being advertised starting at a higher pay rate than mine. How do I again respectfully request my review and an appropriate pay increase? Love what I do, but am becoming more and more resentful of being used to perform duties above my paygrade and delivering results that make my Director look good while I am her "secret weapon" kept in the shadows.
0 Likes • 2 Comments
My current boss wants me out.
He gave me about 2 weeks to "ramp up" and then when I didn't because I hadn't been trained, no communications about projects etc., he dropped me like a sack of potatoes. Thing is he has my coworkers in on it too. They're gaslighting me and cutting me out of communications also. Basically, I'm trying to work in a Silo with little or no information. Only have 2 more years until retirement. Afraid at my age, won't be able to get another job. Do I just hang in there?
0 Likes • 1 Comment
I have retaken my LVN license 3x and unable to pass. I have 8 years in healthcare and work as a clinical manager. I know I should keep trying but I need work and something higher paying. Any suggestions on what I can do without a license? Or for remote work?
0 Likes • 0 Comments
I am wondering if it is normal to have panicked thoughts regularly at a costumer service job. I find I get anxious every time a costumer comes up. I also a am finding myself wanting costumers to go away on a the regular basis. I have been in this job for a year and these sort of thought have continued the whole time. I also sometimes feel more irritable and less myself when I am at work compared to when I am at home. I know some people say its just what the job is, but I find I disliking people more and more, when I used to be so caring.
I would like to know if this is normal, does everyone feel like this in this sort of job.
0 Likes • 3 Comments
I had an in-person interview today and they sent me a rejection email three hours later.
I feel like I'm back at square one and I don't know what else to do.
4 Likes • 15 Comments
I want out…
Today finding out that my boss thinks I’m the problem in the office is mentally affecting my work. I need to leave this company. It is a toxic work environment but when I addressed the way a new office coworker spoke to me who is at the same level as I and corrected it I was told by my boss “We’re not doing this again” faulting me for the problem when this man spoke so poorly to me. I just can’t leave because I need insurance for my babies, I can’t find another good paying job either. What do I do